Danny and Henery Max

Devastation

  • Danny (13) and Henery (10) were both diagnosed with Batten disease, a rare, progressive neurological disorder.

  • Danny has already experienced significant vision loss, including tunnel vision and seeing only in black and white.

  • The family is facing the emotional weight of an uncertain future while navigating ongoing treatments and medical care.

  • Their parents are balancing the heartbreak of their sons' diagnosis with the financial burden of medical bills and countless appointments.

Daily Challenges

  • Both parents work overnight as nurses while caring for their children during the day.

  • Managing frequent medical appointments, treatments, and daily responsibilities has created overwhelming physical and emotional exhaustion.

  • Danny's changing vision has made everyday activities more difficult and requires thoughtful accommodations.

  • After Make-A-Wish plans fell through due to complications, local neighbors rallied together to donate a shed for the family. While the generous gift was in place, they needed help turning it into a meaningful space.

  • Their father described experiencing "decision fatigue" and simply needed someone to step in with guidance, ideas, and support.

Design Solutions

  • Transformed the donated backyard shed into a safe, comfortable, sensory-friendly retreat for both boys.

  • Designed the space around their unique vision needs rather than aesthetics alone.

  • Carefully considered:

    • Accessible room layout

    • Comfortable furnishings

    • Appropriate lighting

    • Texture and tactile elements

    • Sound and sensory comfort

    • Safety and ease of navigation

  • Created a welcoming environment where both brothers could relax, play, spend time together, and enjoy a space designed specifically for them.

Impact

  • The shed became a meaningful place where Danny and Henery can enjoy their childhood despite the challenges they face.

  • The project provided the boys with a sense of independence, comfort, and ownership.

  • Their parents experienced relief knowing one major burden had been lifted from their shoulders.

  • The completed space serves as a reminder that they are supported by a caring community.

  • More than a room makeover, the project brought hope, encouragement, and practical love into a family walking through unimaginable circumstances.